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Table 3 Reasons for parents’ refusal to participate in health research

From: Parental engagement in research on paediatric lower respiratory tract infections in Indonesia

Reasons not to participate

General health research

(n = 124*)

N (%)

LRTI research

(n = 693†)

N (%)

Concerns about the potential negative effect on the child’s health

58 (46.8)

395 (57.0)

Does not perceive a necessity

46 (37.1)

210 (30.3)

Concerns that the intervention(s) would make the children irritable

31 (25.0)

182 (26.3)

Lack of time

28 (22.6)

63 (9.1)

Concerns about personal data being shared with others

17 (13.7)

67 (9.7)

Lack of personal advantages

7 (5.6)

23 (3.3)

Concerned about being stigmatized, recognized as suffering from a disease

4 (3.2)

27 (3.9)

The child is too young

0 (0.0)

7 (1.0)

The child refused

0 (0.0)

5 (0.7)

Concerned that medical intervention will lead to psychological trauma of the child

0 (0.0)

3 (0.4)

Not sure about the relevance of the study

0 (0.0)

3 (0.4)

Concerns about the COVID-19 pandemic situation

1 (0.8)

5 (0.7)

Unspecified

1 (0.8)

0 (0.0)

  1. *43 parents had more than one reasons
  2. †198 parents had more than one reasons