Table 1 Child and family variables

Nature cardiac defect

Age of mother (years)

Acyanotic

32 (80%)

Median [Range]

30 [16 – 43]

• VSD

15 (37.5%)

Mean (SD)

29.6 (±8.0)

• AVSD

9 (22.5%)

• PDA

4 (10%)

• COA

3 (7.5%)

• AS

1 (2.5%)

Cyanotic

8 (20%)

• DORV

3 (7.5%)

• TGA

1 (2.5%)

• TAPVD

1 (2.5%)

• HLHS

1 (2.5%)

• TOF

1 (2.5%)

• TA

1 (2.5%)

Complicated CHD

Primary caregiver

Uncomplicated

12 (30%)

Mother

39 (97.5%)

Complicated PHT and/ or CCF:

28 (70%)

Father

1 (2.5%)

• PHT

6 (21.4%)

• CCF

17 (60.7%)

• PHT and CCF

5 (17.9%)

Presence genetic abnormality

Number of siblings

CHD alone

30 (75%)

Median [Range]

1 [0 – 4]

CHD with Down syndrome

10 (25%)

Mean (SD)

1.2 (±1.1)

Age baseline assessment (months)

Mean level of education

Median [Range]

7.4 [1.4 – 20.9]

Mothers

Grade 9-11

Mean (SD)

9.2 (± 5.4)

Fathers

Grade 9-11

Gestational age (weeks)

Unemployed

Median [Range]

38 [31 – 41]

Mothers

33 (85%)

Mean (SD)

37.5 (±2.0)

Fathers

13 (32.5%)

Birth weight (grams)

Socioeconomic status

Median [Range]

2800.0 [1640 – 3950]

Mean socioeconomic status

Lower income

Mean (SD)

2878.5 (±608.3)

Lower income

35 (87.5%)

Age at first cardiac surgery (months)

Distance services (kilometers)

Median [Range]

7.5 [1.4 – 20.9]

Median [Range]

162.4 [12 – 782.8]

Mean (SD)

9.4 (±5.5)

Mean (SD)

202.8 (±188.7)

HLOS post-surgery (days)

Feeding difficulties present

10 (25%)

Median [Range]

9 [3 – 108]

Mean (SD)

14.7 (±18.8)