Table 1 Participant characteristics
Characteristic | Frequency (%) |
|---|---|
Year of birth (n = 124) | |
2006–2007 | 20 (16%) |
2008–2009 | 27 (22%) |
2010–2011 | 18 (15%) |
2012–2013 | 28 (23%) |
2014–2015 | 31 (25%) |
Sex (female) (n = 124) | 54 (44%) |
Consenting treatment centre (n = 124) | |
Centre A | 30 (24%) |
Centre B | 29 (23%) |
Centre C | 15 (12%) |
Centre D | 10 (8%) |
Centre E | 10 (8%) |
Centre F | 8 (7%) |
Centre G | 5 (4%) |
Centre H | 5 (4%) |
Other participating centresa | 12 (10%) |
Ascertainment (n = 124)b | |
Newborn screening method only | 107 (86%) |
Newborn screening and other method(s) | 13–16 |
Other method(s) only | < 5 |
Neonatal complications (yes) (n = 104) | 32 (31%) |
Hypoglycemia | 13 (13%) |
Other complications without documented hypoglycemia (e.g. respiratory distress, antibiotics, IV fluids, and/or jaundice) | 19 (18%) |