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Table 2 Description of identified neonatal individual-level datasets by variable categories

From: Neonatal inpatient dataset for small and sick newborn care in low- and middle-income countries: systematic development and multi-country operationalisation with NEST360

Type

Individual-Level Datasets

Tool

Neonatal Nutrition Network

Clinical Information Networkc

CPAP Data Summaryd

WHO iKMC Study

SNCU Facility Based Newborn Care Database

Vermont Oxford Global Database

NEST360 Neonatal Inpatient Dataset

Reference

[32]

[27]

[29]

[33, 34]

[21]

[31]

-

Country

Nigeria

Kenya

Malawi

Multi-Country

India

Multi-Country

Multi-Country

No. Variables

69

120

55

254

113

64

60

Purpose

Research (Newborn Nutrition)

Research (Monitoring Data Quality)

Research (Oxygen Therapy and CPAP Use and Outcome)

Research (KMC Use and Outcome)

Programme (Monitoring Outcomes)

Programme (Quality Improvement)

Alliance (Quality Improvement and Tracking Outcomes)

Category

Number of Variables (Proportion of Variables, %)

Maternal Historya

23 (33%)

19 (16%)

4 (7%)

67 (26%)

41 (36%)

14 (22%)

6 (10%)

Birth Details

7 (10%)

9 (8%)

8 (15%)

27 (11%)

14 (12%)

13 (20%)

8 (13%)

Admission Details and Identifiers

8 (12%)

25 (21%)

14 (26%)

28 (11%)

17 (15%)

6 (9%)

14 (23%)

Newborn Complications and Observations

1 (1%)

25 (21%)

13 (24%)

56 (22%)

32 (28%)

1 (2%)

11 (18%)

Newborn Interventionsb

16 (23%)

34 (28%)

13 (24%)

49 (19%)

2e (2%)

14 (22%)

13 (22%)

Discharge Outcomes, Diagnosis, Cause of Death

14 (20%)

7 (6%)

3 (6%)

21 (8%)

7 (6%)

16 (25%)

7 (12%)

Post Discharge Follow-up

0 (0%)

1 (1%)

0 (0%)

6 (2%)

0 (0%)

0 (0%)

1 (2%)

  1. Abbreviations: NEST360 Newborn Essential Solutions and Technologies, ARI Acute Respiratory Illnesses, KMC Kangaroo Mother Care, CPAP Continuous Positive Airway Pressure, WHO World Health Organisation, SNCU Special Newborn Care Unit, IV Intravenous, CIN Clinical Information Network
  2. aIncludes variables relating to maternal history (i.e., chronic, infection, obstetric), family and social economic background
  3. bModule contains variables relating to microbiology, KMC, Oxygen therapy, CPAP, mechanical ventilation, antibiotics, apnoea treatment, photography, IV fluids, and transfusions
  4. cUsing CIN REDCap data dictionary (2019)
  5. dUsing Acute Respiratory Illness Form
  6. eBoth variables are open-ended note format data types