Table 1 Review and mapping of existing national routine data landscape in the newborn ward across countries implementing with NEST360
Country | Category | Document Name | Purpose | No. Variables | No. Facilities | Years | Level | Overview |
|---|---|---|---|---|---|---|---|---|
Kenyaa | Register | Inpatient Neonatal Register | Standardised National MOH | 41 | 221 | 2020—Present | Individual | Captures information on demographics, diagnosis, key interventions, and outcome for all newborns admitted to newborn units. |
Register | KMC Register | Non-Standardised Hospital-Specific | 23 | b | b | Individual | Completed in KMC ward for the admitted babies. | |
Register | CPAP Register | Non-Standardised Hospital-Specific | 13 | b | b | Individual | Completed within the newborn unit for babies admitted and receiving CPAP management. | |
Patient Form (Paper) | Neonatal Admission Record | Standardised National MOH | 80 | 221 | 2006—Present | Individual | Used to capture triage data on each inpatient. Divided into sections: 1) maternal history, 2) neonatal biodata and clinical history, 3) neonatal examination findings and admission vital signs, 4) basic laboratory tests ordered and 5) primary and secondary diagnosis on admission [27]. | |
Patient Form (Paper) | Comprehensive Newborn Monitoring Form | Research (CIN) | 43 | 24 | 2019—Present | Individual | Used to capture inpatient data on interventions and monitoring delivered to admitted newborns [28]. | |
Patient Form (Paper) | Newborn Unit Discharge/Exit Form | Research (CIN) | 20 | 27 | 2018—Present | Individual | Summary information that includes demographics, discharge diagnosis and outcome. | |
Patient Form (Paper) | Internal Newborn Unit Transfer Form | Research (CIN) | 56 | 24 | 2019—Present | Individual | Complete for all newborns in maternity requiring admission to the newborn unit | |
Aggregate Data | Inpatient Neonatal Summary | Standardised National MOH | 54 | 221 | 2019—Present | Facility | Captures aggregate neonatal data relating to admissions, birthweight, admission weight, deaths, cause of admission, gestation at birth, interventions, and deaths due to specific conditions. | |
Malawi | Register | National KMC Register | Standardised National MOH | 5 | 195 | 2015 – Present | Individual | A national-level register capturing five indicators: 1) KMC initiation rate, 2) KMC referral completion, 3) survival to discharge, 4) death before discharge, 5) left against medical advice [8]. |
Register | National Sick Neonate Register | Standardised National MOH | 21 | 195 | 2017 – Present | Individual | Documentation of each admitted baby and monthly admission summaries. | |
Patient Form (Paper) | Neonatal Admission Form | Standardised National MOH | 50 | 195 | 2018 – Presentc | Individual | Two pages (i.e., labour ward and nursery ward) completed at the time of admission. | |
Patient Form (Paper) | Critical Care Pathway Form | Standardised National MOH | 37 | 195 | 2018 – Presentc | Individual | Monitoring sheet for each admitted newborn throughout the admission duration in the nursery ward (inc. vitals, daily weight, interventions, and drug administration). | |
Patient Form (Paper) | Acute Respiratory Illnesses Form | Research (CPAP Study Team) | 50 | 36 | 2013 – 2019 | Individual | Form used to collect information relating to CPAP or oxygen therapy use [29]. | |
Patient Form (Paper) | CPAP Monitoring Sheet | Standardised National MOH | 26 | 36 | 2013 – Present | Individual | Monitoring sheet for newborns on CPAP including machine settings, vitals, and signs of respiratory distress [29]. | |
Aggregate Data | Sick Neonate – Facility Monthly Report | Standardised National MOH | 29 | 37 | 2021 – Present | National | Output data in DHIS2 from the Facility Monthly Report Form. | |
Aggregate Data | Maternity Monthly Report | Standardised National MOH | 47 | 195 | 2016 – Present | National | Data relating to five categories: 1) delivery process, 2) delivery location, 3) maternal status, 4) newborn complications, 5) newborn outcomes. | |
Tanzania | Register | Postnatal Register | Standardised National MOH | 33 | 6602 | 2018—Present | Individual | Filled during postnatal care visits for mother and baby within 42 days after delivery. |
Register | National KMC Register | Standardised National MOH | 24 | 2534 | 2016—Present | Individual | Filled at KMC ward for the newborns admitted at KMC ward and the services received during hospital stay. | |
Aggregate Data | Tally Postnatal | Standardised National MOH | 3 | 6602 | 2018—Present | Facility | Used together with the postnatal register to ensure all information entered into the register is entered in the appropriate section. | |
Aggregate Data | Postnatal Summary Report Form | Standardised National MOH | 4 | 6602 | 2018 – Present | Facility | Filled during the first week of the following month and copy sent to district to be entered into DHIS2. | |
Nigeria | Register | Neonatal Admission Register | Standardised FMOH / SMOH | 35 | 5865 | 2015 – Present | Individual | Used in each newborn ward to capture data relating to the newborn admitted to the unit, including variables relating to demographics, delivery information, diagnosis, interventions, and outcome. |