Table 2 Univariate description of the self- and proxy-assessment scores on the PedsQLTM3.0DMDfv
Dimension | Self-assessment | Proxy-assessment | ||||||
|---|---|---|---|---|---|---|---|---|
N | Min–Max | Med (IQR) | Mean (SD) | N | Min–Max | Med (IQR) | Mean (SD) | |
Daily Activities | 89 | 0.0 – 100.0 | 45.0 (35.0 – 65.0) | 49.3 (26.3) | 99 | 0.0 – 100.0 | 40.0 (20.0 – 60.0) | 41.3 (25.2) |
Treatment | 89 | 12.5 – 100.0 | 62.5 (56.3 – 81.3) | 67.3 (19.0) | 98 | 0.0 – 100.0 | 62.5 (43.8 – 81.3) | 62.0 (23.1) |
Worry | 89 | 41.7 – 100.0 | 83.3 (70.8 – 91.7) | 80.9 (14.9) | 99 | 0.0 – 100.0 | 58.3 (41.7 – 79.2) | 58.0 (24.0) |
Communication | 89 | 0.0 – 100.0 | 58.3 (41.7 – 83.3) | 58.2 (27.6) | 99 | 0.0 – 100.0 | 50.0 (25.0 – 75.0) | 48.0 (32.5) |