Table 7 Impacts of health service delivery and care on parents
Impact on parents | ||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|
Domain of health service delivery & care | Emotional wellbeing | Ability to parent child in way they want | Trust in staff | Care burden | Empowerment & control | Understanding of situation being faced | Partnership (versus conflict) with staff | Maintenance of usual family routine | At ease with (versus regretting) treatment & care decisions | Satisfaction with treatment & care | Sense of hope | Physical wellbeing |
STAFF ACTIONS | ||||||||||||
Sharing medical information & decision making | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ||
Management of child’s condition | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ||||
Supporting coping | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ||||||
Supporting parenting during inpatient stays | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | |||||
ORGANISATIONAL FEATURES | ||||||||||||
Physical environment during inpatient stays | ✓ | ✓ | ✓ | ✓ | ||||||||
Continuity & coordination of care | ✓ | ✓ | ✓ | ✓ | ||||||||
Access to additional support | ✓ | ✓ | ✓ | |||||||||