Table 6 Recommendations for the content of the material in the application
Expert | Statement | Suggestions |
|---|---|---|
1, 2 | Data input 15 symptoms due to chemotherapy using the SSPedi tools | • Added signs of infection and bleeding in the Symptoms menu • Displays a description of each symptom operationally |
1, 2 | Input body temperature, weight, height, and upper arm circumference (UAC) | • Using standardized nutritional status parameters and appropriate measuring tools in measuring children’s nutritional status • Added upper arm circumference measurement step |
2, 5 | Input data for children’s daily activities | • There is a warning sign if the data is not filled in |
1, 2, 3, 4 | How to calculate a child’s calorie needs | • Using the REE formula according to FAO/WHO/UNU • Implementation of applicable calorie and fluid needs for families • Calorie and fluid requirement formulas are obtained from data input by the user |
1, 2, 3 | Management of nausea or vomiting | • Added management of dehydration due to vomiting or mucositis |
2 | Nutrition and fluid management | • Adding menu recommendations according to patient needs and ready-to-use products available on the market |
1, 2, 3 | Mucositis management | • Create a symptom algorithm that can be treated at home or must be immediately taken to the hospital |
2 | Management of physical activity and rest (sleep) | • Adding material on identifying danger signs that cause fatigue, such as anemia, hypoglycemia, or electrolyte disturbances due to dehydration so that management takes the form of immediately taking them to the hospital • Adding data on signs and symptoms that are easily recognizable by parents for decreased physiological status (not laboratory results) |
1, 3 | Management of fever and neutropenia | • Immediately take to the hospital if fever or neutropenia • Added anal fissure management |
2 | Management of relaxation activities, hypnosis, and positive thoughts | • Relaxation management is practiced in the form of video examples |
2 | Medication according to doctor’s prescription | • Add an explanation of the type of drug that should be taken, the timing and risk of drug interactions with other foods/drinks/drugs |
1 | Daily, weekly, monthly chart depiction as needed in monitoring patient’s health status | • What does the presentation of a graph? |
2 | Acute lymphoblastic leukemia information | • Added explanation of invasive procedures |
2 | Chemotherapy information | • It uses layman’s terminology and is easy to understand |