Table 4 Some of the answers to the open-ended question about the caregiver’s feelings at home (n = 40)

Expressing fear/restlessness:

 “I was afraid my boy could get worse, and I didn’t know what to do.”

 “I have felt a bit restless and nervous because of lack of confidence, as I knew I didn’t have a nurse 24 hours a day (…).”

Other feelings:

 “I’ve felt happier because I’ve been accompanied by my family and the health team, which has helped professionally and humanly.”

 “I feel tired, but happy to see my child getting better.”

 “What really helped was not having to entertain a 1-year-old girl in a hospital bed. She seemed quieter in her own environment. The medication administration produced me some anxiety at the beginning, but having seen this in hospital, after a while everything went smoothly (...). I also was very grateful with the hospital’s training (...).”