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Table 8 Ranking of perceived referral barriers contributing to wait time (2019 Survey)

From: Awareness screening and referral patterns among pediatricians in the United States related to early clinical features of spinal muscular atrophy (SMA)

Always, Usually, & Sometimes

Rarely & Never

Restrictions on providers’ options due to insurance

67.3%

Patient inability to pay / no insurance coverage

56.7%

Lack of triage / priority allocation at specialist’s office

63.3%

Excessive patient travel time / distance

49.0%

Lack of neurologists / pediatric neurologists within your region

62.0%

Lack of access to reliable transportation

47.8%