Table 4 Baseline pain conditions and their management for interviewed participants
From: The lived experience of chronic pain and dyskinesia in children and adolescents with cerebral palsy
Child | Body locations (upper limbs, lower limbs, back) (n/21)a | Faces Pain Scale Revised (0 = 10) | Health Utilities Index - 3 prior 2 weeks (1–5) | Pain medications prior 3 months | Non-pharmacological pain treatments prior 3 months | Health professionals consulted regarding pain prior 3 months |
|---|---|---|---|---|---|---|
A | Abdomen, back, lower limbs (6/21) | 4 | 4 | Oxycodone, gabapentin | Positioning, hydrotherapy | Paediatrician, orthopaedic surgeon |
B | Face/temple/jaw, head, lower limbs (3/21) | 6 | 2 | Paracetamol, gabapentin | Hot pack, massage, distraction, rest | Paediatrician |
C | Abdomen, lower limbs (3/21) | 4 | 2 | Paracetamol | Massage, positioning | Physiotherapist |
D | Head, lower limbs, back, abdomen, face/jaw/temple (11/21) | 4 | 3 | Diazepam, paracetamol, ibuprofen | Massage, heat packs, cuddles, distraction, positioning | Physiotherapist, paediatrician |
E | Lower limbs, throat/neck, 5/21 | 6 | 2 | Paracetamol | Massage, stretching, exercises | None |
F | Face/jaw/temple, chest, abdomen, groin/pubic area, back (9/21) | 10 | 5 | Paracetamol, ibuprofen, gabapentin, diazepam | Hydrotherapy, stretching, positioning, leg splints | Physiotherapist, paediatrician, surgeon, emergency room doctor, pain specialist |
G | Back, head, lower limbs (6/21) | 2 | 3 | Paracetamol, ibuprofen | Stretching, icepacks, massage, rest, strengthening exercise, changing positions, activity modification | Physiotherapist, occupational therapist |
H | Face/jaw/temple, chest, abdomen, groin/pubic, back, throat/neck, upper limbs, lower limbs (20/21) | 8 | 2 | Paracetamol, ibuprofen, midazolam | Feldenkrais techniques, chiropractor adjustments, massage, stretching, positioning | Paediatrician Feldenkrais therapist, physiotherapist, chiropractor |