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Table 4 Baseline pain conditions and their management for interviewed participants

From: The lived experience of chronic pain and dyskinesia in children and adolescents with cerebral palsy

ChildBody locations (upper limbs, lower limbs, back) (n/21)aFaces Pain Scale Revised (0 = 10)Health Utilities Index - 3 prior 2 weeks (1–5)Pain medications prior 3 monthsNon-pharmacological pain treatments prior 3 monthsHealth professionals consulted regarding pain prior 3 months
AAbdomen, back, lower limbs (6/21)44Oxycodone, gabapentinPositioning, hydrotherapyPaediatrician, orthopaedic surgeon
BFace/temple/jaw, head, lower limbs (3/21)62Paracetamol, gabapentinHot pack, massage, distraction, restPaediatrician
CAbdomen, lower limbs (3/21)42ParacetamolMassage, positioningPhysiotherapist
DHead, lower limbs, back, abdomen, face/jaw/temple (11/21)43Diazepam, paracetamol, ibuprofenMassage, heat packs, cuddles, distraction, positioningPhysiotherapist, paediatrician
ELower limbs, throat/neck, 5/2162ParacetamolMassage, stretching, exercisesNone
FFace/jaw/temple, chest, abdomen, groin/pubic area, back (9/21)105Paracetamol, ibuprofen, gabapentin, diazepamHydrotherapy, stretching, positioning, leg splintsPhysiotherapist, paediatrician, surgeon, emergency room doctor, pain specialist
GBack, head, lower limbs (6/21)23Paracetamol, ibuprofenStretching, icepacks, massage, rest, strengthening exercise, changing positions, activity modificationPhysiotherapist, occupational therapist
HFace/jaw/temple, chest, abdomen, groin/pubic, back, throat/neck, upper limbs, lower limbs (20/21)82Paracetamol, ibuprofen, midazolamFeldenkrais techniques, chiropractor adjustments, massage, stretching, positioningPaediatrician Feldenkrais therapist, physiotherapist, chiropractor
  1. aBody locations of pain were measured according to the Child Arthritis and Rheumatology Research Alliance Body Diagram