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Table 1 Measures and time points for patients and parents

From: Social inequalities in the participation and activity of children and adolescents with leukemia, brain tumors, and sarcomas (SUPATEEN): a protocol for a multicenter longitudinal prospective observational study

OutcomesInstrumentst1t2t3
PatientParentPatientParentPatientParent
DemographicsStandard inventoryxx    
Clinical dataCRFx x x 
ParticipationCASPx x x 
Evaluation of the treatmentFBB  xx  
Self-conceptSDQx x x 
FatigueEORTC QLQ-C30x x x 
Social SupportSSSx x x 
Illness perceptionIPQx x x 
Self-efficacySWEx x x 
OptimismBFWx x x 
AutonomyKidscreenx x x 
Psychosocial problems/strengthsSDQ-Dx x x 
Familial burdenFaBel   x x
Family resourcesFES x   x
Psychosocial needsSCNS-SF-34 x x  
Satisfaction with lifeSWLS x x x
Doctor-parent relationshipPRA-D   x  
Quality of lifeKINDL-Rx x x 
SF-12 x x x
Sense of coherenceC-SOCx x x 
SOC-L9 x x x
CopingCODIx x x 
CHIP-D x x x
Mental healthChilD-Sx x x 
HADS x x x