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Table 1 Case characteristics with STAI and SF-36 scores

From: Improving transitions in care for children with complex and medically fragile needs: a mixed methods study

Case #

Child’s age

Child’s diagnoses

Single or dyad household

Support systems

STAI weighted scoresa (T2)

STAI weighted scoresa (T3)

SF-36 (T1) scoresa

SF-36 (T4) scoresa

Case #1

2 months

Cardiac Septal Defect, Hip Dysplasia

2

Has family support and a family member with medical training

36

40

PCSb: 53.02

MCSc: 51.62

PCS: 58.92

MCS: 55.73

Case #2

15 days (adjusted age)

Genetic Condition

2

Family live close by in home community

20

21

PCS: 28.99

MCS: 53.61

PCS: 53.27

MCS: 53.15

Case #3

10 years

Osteomyelitis, Home IV Antibiotics

2

Family staying in home temporarily to ease the stress of the transition. Family live in close proximity, neighbor is a medical professional.

36

48

PCS: 56.96

MCS: 57.87

PCS: 58.74

MCS: 42.12

Case #4

5 months (adjusted age)

Home NJ Feeds

1

Co-parent lives short distance away. Family visting from out-of-province to provide support. Co-parent’s family supportive.

20

20

PCS: 55.04

MCS: 52.40

PCS: 51.46

MCS: 58.00

Case #5

1 year

Esophageal Defect, Rehab

2

None identified

46

45

PCS: 61.16

MCS: 42.29

PCS: 61.3

MCS: 45.18

Case #6

9 years

Leukemia, Rehab, Ulcerative wounds

2

Family of both caregivers live in close proximity. Family friend who is a retired health care professional

59

48

PCS: 57.95

MCS: 27.98

PCS: 60.22

MCS:45.97

  1. aSF-36 Short Form Health Survey
  2. bPCS Physical Component Score
  3. cMCS Mental Component Score