Table 4 Outcomes and measurement tools

Anxiety (20, 31)

State Trait Anxiety Inventory (9); State Trait Anxiety Inventory -state scale only (3); Generalized Anxiety Disorder 7 (2); Psychiatric Symptom Index (2); Beck Anxiety Inventory (1); State Anxiety Inventory (1); Taylor’s Manifest Anxiety Scale (1)

Stress (12, 18)

Acute Stress Disorder Scale (1); Pediatric Inventory for Parents (measures parenting stress) (1); Parental Stress Scale (1); Parental Stressor Scale: PICU (1); Parenting Stress Index (1); Parenting Stress Index-Short Form (2); Pediatric Stressor Scale: Pediatric Intensive Care (2); Perceived Stress Scales (1); SPSQ, Swedish version of PSI (1); Symptoms of stress inventory (1)

Depression (11, 17)

Beck Depression Inventory-II (3); Beck Depression Inventory (2); Center for Epidemiologic Studies Depression Scale (1); Center for Epidemiologic Studies Short Depression Scale (1); Depression (1); Depressiveness Scale, Complaints List (1); Patient Health Questionnaire 9 (1)

Coping (10, 15)

Coping Health Inventory for Parents (3); Family Crisis Oriented Personal Evaluation Scale (2); Brief Cope Inventory (1); Coping question (1); Issues in Coping With IDDM-Parent Scale (1); Researcher developed questions (1)

Family functioning (9, 14)

Family Adaption and Cohesion Evaluation Scale (1); Family Management Measure (1); Feetham Family Functioning Survey (2); Iceland Expressive Family Functioning Questionnaire (2); Researcher developed questions (1); Relationships between family members through family arches (1); McMasters Family Assessment Device (1)

Quality of Life (6, 9)

PedsQL Family Impact Module (2); 36-Item Short Form Survey (1); Pediatric Asthma Caregiver’s Quality of Life (1); Parents Diabetes Quality of Life Questionnaire (1); Quality of life (family impact scale) (1); World Health Organization Quality of Life – BREF (1)

Mood (6, 9)

Profile of Mood States (4); Brief Mood Rating Scale (1); Profile of Mood States Short Form (1)

Post-traumatic stress (5, 8)

Post Hospitalization Stress Index for Parents (2); Impact of Event Scale (1); Posttraumatic Stress Disorder Checklist – Specific (1); PTSD Checklist (1)