Table 3 Assessment instruments and moments of assessment
Instrument | Variable | Assessment moment | ||
|---|---|---|---|---|
T1 | Direct follow-up | T2 | ||
Primary outcomes | ||||
Child Behavior Checklist (CBCL) [32] | Child behavioral/emotional problems | M, F | M, F | |
Symptom Checklist-90-Revised (SCL-90-R) [29] | Parental mental health | M, F | M, F | |
Secondary outcomes | ||||
Rotterdam Quality of Life interview [30] | School days sick/absent | M, F | M, F, T | |
Rotterdam Knowledge Questionnaire [31] | Disease-specific knowledge and illness perception | M, F | M, F | |
Teacher Report Form (TRF) [32] | School functioning | - | T | |
Behavior Rating Inventory of Executive Functioning (BRIEF) [34, 35] or BRIEF-Preschool Version (BRIEF-P) [36] | Executive functioning | M, F | M, F, T | |
Adjusted Groningen Enjoyment Questionnaire [37] | Sports participation, enjoyment of physical activity | M, F | M, F, T | |
2 sports-related questions | Sports participation, enjoyment of physical activity | C | C | |
Penn State Worry Questionnaire (PSWQ) [49] | Parental worry | M, F | M, F | |
Nijmeegse Ouderlijke Stress Index verkort (NOSIK) [40] | Parental stress | M, F | M, F | |
Stress thermometer (DT-P) [50] | Parental stress | M, F | M, F | |
Child Health Questionnaire (CHQ-PF50) [51] | Quality of life of child and sibling | M, F | M, F | |
Short-form (36) Health Survey (SF-36) [52] | Quality of life of parents | M, F | M, F | |
Family Assessment Device, general functioning subscale (FAD) [53] | Family functioning | M, F | M, F | |
Medical record | Medical consumption | R | R | |
Social validity questionnaire | Satisfaction, attendance, and completion of CHIP-Family | – | M, F | M, F |
Predictor variables | ||||
Rotterdam Quality of Life interview [30] | Demographic variables | M, F | – | |
Medical record | Cardiac diagnosis | R | R | |
Life event subscale of the Cognitive Emotion Regulation Questionnaire, child version (CERQ-k) [44] | Life events | M, F | M, F | |