Table 5 Parent interview analysis theme 1 and subthemes: information giving

  Focus of discussion on admission

“The doctor asked me about the condition of my baby, then I explained and she diagnosed the illness and told me about the treatment for my baby” (P1)

“We talked about congenital heart disease and mouth malformation of my baby” (P17)

“We exchanged a lot about her condition, and doctor don’t know what to say [sic], he had his upmost sympathy and concluded that the baby’s disease is difficult to treat” (P9)

  Advice from professionals

“The nurses tell me about the baby too. When there’s something I want to ask, they are ready to answer” (P5)

“The doctors and nurses are very enthusiastic and give good advice to us” (P21)

“Doctor gave advice to me. Because my baby often vomits, doctor told me that I should hold her up while breastfeeding and keep still about 15 min after finishing” (P2)

  Updates about baby’s condition

“Doctors and nurses keep me updated, they go to see me and the baby every morning and every night” (P5)

“Doctors go to see my son everyday and give me all the information I need about his condition” (P1)

“Doctors go to see the babies everyday and make us feel reassured about the condition of our baby” (P13)

  Limited information

“I have to ask the nurses first to know about the baby’s condition. Nurse not tell me” (P9)

“I still do not understand well about the situation of my babies” (P10)

“I want to know more about my baby’s condition. I am afraid my baby may not be able to cope with the pain” (P1)