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Table 1 Changes made to materials as a result of feedback

From: Participatory design in the development of an early therapy intervention for perinatal stroke

Changes

Parents

Healthcare professionals

Terminology

Simplification of text

y

y

Avoidance of emotionally “loaded” words

y

y

Parental emotions

“It’s not your fault”

y

 

Parental expectations

“What Next” section to cover the period after the intervention ends

y

 

Information for parents

Safety (sleeping arrangements: “Back to Sleep” campaign)

y

y

Describe other agencies which may be involved

y

 

Explanation for siblings

y

y

Improving fidelity

Text reminders

y

 

Presentation

Videos and website

y

y

Reduce content on some pages

 

y

General approach

Emphasize play-based, fun aspects

 

y

Consider infant’s attention, learning and infant cues

Calm environment; incorporate repetition; “one toy at a time”; reading infant cues/signals

 

y

Consider parental attention and learning

Parents may need information broken down in chunks

 

y