Table 5 Quotes of participants relating to contextual factors and their effect on outcomes in children post cerebral malaria
Contextual Factors | ||
|---|---|---|
Carer’s views | Professional views | |
Support and relationships | ||
Friends (of child or parents) | “So when I am away maybe to the market. When she wants to respond to nature’s call it’s her friends who carry her. But they are growing and they also need to go to school.” (CG 16) | “They’re not able to support themselves, they are unable most of the times to walk and become completely dependent to the people who are around them. So for their quality of life to be achieved, it is dependent of the people who surround them”. (Palliative care professional) |
Attitudes | ||
Individual attitudes of Immediate and extended family | “This is a very big challenge (having a child with neurodisability) which you cannot manage to handle on your own, you need a relative to help you” (CG 2) | “become completely dependent to the people who are around them. So for their quality of life to be achieved, it is dependent of the people who surround them” (nurse 5) |
Societal attitudes | “My social life is really affected, when I go out, my neighbors shun me (amandisala)… Im just alone in my house with my child… When I go outside, I am treated with reproach/ shame (chimakhala ndithu chitonzo)” (CG 4) | |