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Table 3 Quotes of participants on outcomes of CM relating to Body Function and Structure

From: Exploring neurodevelopmental outcome measures used in children with cerebral malaria: the perspectives of caregivers and health workers in Malawi

Functioning and Disability

Body Function

Carers views

Professional views

Mental Function

“the head doesn’t function normally mutu suugwila nchito bwino” (CG 2)

 

Sensory Function

Hearing Function

now I can differentiate because she was not hearing but now she can hear.” (CG 8)

“Mother said when I was being discharged I was told will have hearing problem and indeed when we were trying to communicate could not hear but slowly has started picking up. (Nurse 1)

Seeing Function

“My concerns are on school since she can’t see properly so my worry is could she continue with school with no problems” (CG 12)

“Whilst they are still in the hospital here they lose their sight which of course most of them do regain it” Nurse 3

“That’s what we feel, eh, the child says”I was able to see but now I’m not seeing” so you develop some behavioural problems” (Rehabilitation professional)

Movement functions

Involuntary movement functions (seizures)

““I say “how can I travel, what if he convulses on the way, what will I do?” (CG 2)

“Now he just blinks continually but before he would have frank seizures” (CG 4)

“Same thing with epilepsy we might not see it in the acute phase but a year down the line post malaria episode you might start to see epilepsy developing”. (Clinician 1)

Control of voluntary movement functions

“the hand was fist closed could not open and the leg was not in its normal position” (CG 1)

“Her arm….she is unable to lift things” (CG 2)

“I was thinking on motor should be emphasised since it is supporting the others since when the gross motor is not good fine motor is not good it also affects the cognitive”. (Nurse 2)

“Then there are other children who lose their sight some get paralysed one side or a certain body part is not working properly..” (Nurse 3

“The complications parents will be worried because from that point they will have regression in neuro development” (Clinician 1)