|  | Patients (N = 7) | Parents (N = 11) | Survivors (N = 18) |
---|---|---|---|---|
Interpersonal relationships | Honesty | x | x | x |
 | Reassurance, support and empathy | x | x | x |
 | Being taken seriously |  | x | x |
 | Sufficient time for communication | x | x | x |
 | Time to come to terms with upsetting information | x | x | x |
 | Trust in health care professionals' expertise |  | x | x |
 | Not being constantly addressed as patient | x | x | x |
 | Acquaintance with child patient | x | x | x |
Information exchange | Being fully informed | x | x | x |
 | Clarity of information | x | x | x |
 | Opportunity to ask questions during the consultation | x | x | x |
 | Avoidance of technical jargon | x | x | x |
 | Additional written information |  | x | x |
 | Unambiguous information |  | x |  |
 | Differentiation in amount and kind of information |  | x | x |
 | General information at diagnosis, detailed information later | x | x | x |
 | Repetition of important information |  | x | x |
 | Written summary of consultations |  | x |  |
 | Notification of the timing of consultations | x | x | x |
 | Presence of patient during consultations | x | x | x |
 | Parent-patient role delineation in information exchange | x | x | x |
 | Accessibility of health care providers | x | x | x |
Participation in decision making | Level of participation in major decisions | x | x | x |
 | Level of participation in minor decisions | x | x | x |