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Table 2 Key Studies Investigating Health and Well-being of Caregivers of the Elderly

From: Caregiving process and caregiver burden: Conceptual models to guide research and practice

Author & Year

Sample

Factors investigated

Associations

Caserta, Lund & Wright[50] 1996

160 caregivers

Examine the multidimensional nature of caregiver burden by analyzing the patterns of association between 5 dimensions of burden

Time dependence was the most influenced by patient impairment and caregiving involvement Emotional burden was largely a function of caregiving satisfaction Physical health measures explained little variance in physical burden, which was mostly explained by depression Findings lend support to a multidimensional view of burden

Evans, Bishop & Ousley[42] 1992

181 caregivers in final sample

Assessed positive, neutral and negative aspects of caregiving And impact of caregiving on family functioning

No clinical or statistical difference, although moderately more anxiousness, depressive and somatic symptoms were reported during the duration of the caregiving experience Family relation s seemed to be a source of strength

Kiecolt-Glaser, Dura, Speicher, Trask, Glaser[39] 1991

69 spousal caregivers with > 5 years in role compared to matched controls 13 month time frame

Depression, immune function and health

Caregivers show decreases in cellular immunity, more days of infectious illness, greater incidence of depressive disorders, those who had less social support, and were most distressed by their role showed the greatest negative changes in immune function

Mittleman, Ferris, Shulman, Steinberg, Ambinder, Mackell & Cohen[23] 1995

206 spouse-caregivers randomly assigned to either treatment or control group, 173 completed the study

Psychosocial intervention program (individual family counseling, continuous ad-hoc counseling availability, and support groups) and depression in caregivers of Alzheimer's patients

After 1 year, control group became increasingly depressed while intervention group remained stable; by the 8th month, treated caregivers were significantly less depressed than control group Suggests enhancing long-term social support can have a significant impact on depression in caregivers

MaloneBeach E, Zarit S & Farbman D[60] 1995

43 family caregivers to demented elders

Relationship of daily mood and daily events in a caregiving context

Some caregivers are highly distressed by caregiving demands, some report moderate levels of distress, and others show no relationship between mood and daily events

Morrissey, Becker & Rupert[51] 1990

47 spouses of patients with AD caring form them in the home

Marriage, work, recreation and mood were investigated as a function of patient's disability level and coping resources which were available or used

Patient's disability level has more negative impact on the caregiver's marriage and recreation, work had a reverse relationship

Schulz, O'Brien, Bookwala, Fleissner[22] 1995

Review of the literature of caregiving for adults with AD

Depressive symptoms

Virtually all studies report elevated levels of depressive symptoms among caregivers.

Sisk, R[52] 2000

121 predominantly female caregivers, mean age 61.1 years

Perception of burden and health-promoting behaviors of caregivers

Those perceiving lower subjective burden practice more health-promoting behaviors than those with higher subjective burden scores

Skaff M, Pearlin L, Mullen J[33] 1996

456 spouses and adult children caring for a family member with Alzheimer's disease

The impact of transitions in careers of Alzheimer's caregivers on their sense of mastery

For those who continue to care for their relative, mastery declines; for those who place their relative in a care facility, mastery remains unchanged; for those who experience death of their relative, mastery increases