Table 1 Demographic characteristics, quality of life and comorbidity of the children and adolescents participating in HELIOS, for all participants together and stratified according to age group
Total (n = 80) | Children (n = 16) | Adolescents (n = 64) | |
|---|---|---|---|
N | 80 | 16 | 64 |
Age (y) | 14.8 (2.3) | 11.3 (1.2)* | 15.7 (1.6)* |
Male/Female (%) | 33.8/66.2 | 50/50 | 29.7/70.3 |
Ethnicities (%) | |||
Native Dutch | 55.0 | 68.8 | 51.6 |
Immigrants | 45.0 | 31.2 | 45.5 |
o Western (% of total) | 5.0 | 0.0 | 6.3 |
o Non-Western (% of total) | |||
▪ Moroccan | 5.0 | 6.3 | 4.7 |
▪ Dutch Antilles/Aruba | 5.0 | 0.0 | 6.3 |
▪ Surinam | 5.0 | 0.0 | 6.3 |
▪ Turkish | 16.3 | 18.8 | 15.6 |
▪ Other Non-Western | 6.3 | 6.3 | 6.3 |
Level of education of the parents (%) | |||
Low | 36.3 | 62.5† | 29.7† |
Medium | 40.0 | 25.0† | 43.8† |
High | 17.5 | 6.2† | 20.3† |
SES (%) | |||
Below average | 62.5 | 73.3 | 63.9 |
Above average | 32.5 | 26.7 | 36.1 |
Household situation (%) | |||
Married/living together | 55.0 | 56.2 | 54.7 |
Divorced | 33.8 | 37.5 | 32.8 |
One parent family(mother) | 7.5 | 0.0 | 9.4 |
Other situation | 3.8 | 6.2 | 3.1 |
Quality of life | |||
EQ-5D utility score | 0.79 (0.22) | 0.72 (0.27) | 0.80 (0.20) |
EQ VAS | 69.1 (21.2) | 76.1 (21.3) | 67.4 (21.0) |
Comorbidity (%) | |||
Acanthosis nigricans | 60.0 | 56.2 | 60.9 |
Blount’s disease | 3.8 | 0.0 | 4.7 |
Gallstones | 3.8 | 12.5* | 1.6* |
Hirsutism (only girls) | 9.4 | 12.5 | 9.1 |
Pseudogynecomastia (only boys) | 92.6 | 100.0 | 89.5 |