Table 4 Ranking of QoL domains and modes of evaluation
Mean ranking ± SD | Rank | |
|---|---|---|
Ranking of QoL domains, from the most important (1) to the least important (12) | ||
• Psychological well-being | 2.3 (1.8) | 1 |
• Physical well-being | 2.7 (2) | 2 |
• Family relationships | 5.1 (2.6) | 3 |
• Self-image | 5.2 (3.4) | 4 |
• Absence of impairment | 5.4 (3.6) | 5 |
• Cognitive function | 5.7 (2.5) | 6 |
• Physical symptoms | 6.1 (3.2) | 7 |
• Emotions and moods | 6.4 (3.3) | 8 |
• Social relationships | 6.8 (3.2) | 9 |
• General behavior | 6.9 (2.7) | 10 |
• Physical activities | 7.7 (3) | 11 |
• School life | 7.8 (3) | 12 |
Ranking of modes of evaluation, from the most preferable (1) to least preferable (5) | ||
• The child completes the questionnaire alone | 2.5 (1.5) | 1 |
• A parent answers for the child | 2.6 (1.2) | 2 |
• The parents help the child to answer the questionnaire | 2.7 (1.2) | 3 |
• The referring physician questions the child during the consultation | 3.1 (1.7) | 4 |
• A care team member not usually involved in the child’s care helps him/her to answer the questionnaire | 4.1 (1.3) | 5 |