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Table 1 Descriptive summary of the relevant studies

From: Parents’ actions, challenges, and needs while enabling participation of children with a physical disability: a scoping review

  Author, Year, and Country Aim of the Study Study Design Description of Study Population Focus on Social Participation, Participation, or Activity
50* Heah T, Case T, McGuire B, Law M Parent/child experiences regarding Qualitative research 8 parents (1 father, 7 mothers) and 8 children (5 - 16 years; 5 boys, 3 girls) with physical disability (neurological and/or musculoskeletal disabilities) Participation in everyday occupations
2007 - what successful participation means to children and families Phenomenological approach
Canada - what support and what hinders participation Semi-structured interviews
51 Antle BJ, Mills W, Steele C,Kalnins I, Rossen B Gain insight into parental health promotion efforts within the family context where there is an adolescent with a physical disability Qualitative research 15 parents (11 two-parent and 4 single parent families) and 15 children (11-16 years; 13 boys, 2 girls) with a diagnosis of physical disability (Cerebral palsy: 7, Spina Bifida: 3, Muscular dystrophy 3, other conditions:2) Play, leisure, and educational activities
2007 Long interview Method
Canada
52 Missiuna C, Moll S, King S, King G, Law M To explore parent perspectives regarding the early experiences of their children with Developmental Coordination Disorder Qualitative research 13 parents of children with Developmental Coordination Disorder (6-14 years; 10 boys, 3 girls) Play, leisure, and educational activities
2007 Phenomenological approach
Canada In-depth interviews
53 Missiuna C, Moll S, Law M, King S, King G Explore the early experiences and participation patterns of children with Developmental Coordination Disorder, as perceived and reported by the parents. Qualitative research 13 parents (2 fathers, 13 mothers; 13 two-parent families) and 13 children (6- 14 years; 10 boys, 3 girls) with diagnosis of Developmental Coordination Disorder Play, leisure, and educational activities
2006 Phenomenological approach
Canada Semi-structured interviews
54 Bedell GM, Cohn ES, Dumas HM Describe parents’ perspectives about the strategies they use to promote social participation of their school-age child with Acute Brain Injury Qualitative research 16 Parents (3 fathers and 16 mothers; 15 two-parent and 1 single parent families) and children (5-15 years; 6 boys, 10 girls) with Acute Brain Injury Social participation
2005 Semi-structured interviews (content and constant-comparison analysis)
USA
55 Huang Y P, Kellett U, St. John W Describe a range of challenging care-giving experiences of Taiwanese mothers providing for their children with cerebral palsy (Cerebral palsy). Qualitative research 15 Mothers of children with Cerebral palsy (8 months- 14 years) Activities of daily living and educational activities
  2011 Hermeneutic Phenomenological
Taiwan
56 Bennett K, Hay D Test the hypothesized model to determine individual, family, and teacher characteristics associated with social skills development in children with physical disabilities Quantitative research 212 parents and children (5-12 years) with a physical disability; 170 teachers in mainstream schools Educational activities
2007 Descriptive study
Australia
57 Hewitt-Taylor J Reports the parents views of their children’s experiences in relation to these activities Qualitative research 14 parents and 14 children (18 months- 18 years) Play and educational activities
2008 Semi-structured interviews
UK
58 Buran CF, Sawin K, Grayson P, Criss S Survey the parents of children with Cerebral palsy and report their needs for information, services, and access to treatment Quantitative research 475 families receiving services at a multidisciplinary Cerebral palsy Clinic; children (mean age 8 years 11 months; 266 girls, 209 boys) Recreational activities
2009 Descriptive study
USA
59 Meehan DR Describe the experience of mothering a 3-6 year old child with hemiparesis Qualitative research 5 Mothers (5 two-parent families) and children (3-6 years; 4 boys, 1 girl)with a diagnosis of hemiparesis Leisure activities
2005 Phenomenological approach
USA Interviews
60 Lawlor K, Mihaylov B, Welsh S, Jarvis S, Colver A Identify features of environments that facilitate or restrict participation Qualitative research 12 Parents (3 fathers, 5 mother, 1 grandmother) and children (5-17 years; 6 boys and 6 girls) with Cerebral palsy Participation as defined by the International Classification of Function
2006 In-depth interviews
UK
61 Vogts N, Mackey A, Ameratunga S, Stott NS To pilot the use to the Craig Hospital Inventory of Environmental Factors (CHIEF) questionnaire to ascertain information regarding barriers to participation Mix-methods: Quantitative data with Qualitative feedback 32 Parents and children (6-16 years, 15 boys and 7 girls) with Cerebral palsy Participation as defined by the International Classification of Function
2010
New Zealand
62 Hewitt-Taylor J Gain understanding of parent’s views regarding the social inclusion of their children who have complex and continuing health needs Qualitative research 14 parents(2 fathers, 12 mothers; 12 two- parent families, 2 single parent families) and 14 children (18 months- 18 years) with complex health needs (learning problems as well as health problems) Leisure activities
2009 Semi-structured interviews
UK
63 Palisano RJ, Almarsi N, Chiarello LA, Orlin MN, Bagley A, Maggs J Identify (1) differences in the number and types of family needs based on the child’s age and gross motor function level; (2) the most frequent expressed family needs; and (3) needs that differ based on gross motor function level Quantitative research
Cross-sectional analytical design
501 parents (389 mothers, 59 fathers, 25 grandmothers, 28 others) and children (2-21 years)with Cerebral palsy Physical activities
2009  
USA
  1. * The numbers in Table 1 correspond with the numbers in the reference list and the numbers in Figure 2.