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Table 2 Resources for information about sex chromosome multisomies

From: Evidence-based recommendations for delivering the diagnosis of X & Y chromosome multisomies in children, adolescents, and young adults: an integrative review

Association of X & Y Chromosome Variations (AXYS)

www.genetic.org

The AXYS organization provides information to patients, families, and health care providers online and in printed materials

AXYS Clinic & Research Consortium

https://genetic.org/im-adult-looking-answers/clinics/

Information about Regional Multidisciplinary Clinics within the US

AXYS Klinefelter (47, XXY) CME Course

https://genetic.org/axys-klinefelter-syndrome-cme-course/

These modules provide 2.5 CME credits. The course is accredited by Wake Forest University

National Organization for Rare Disorders

https://rarediseases.org/about/

Patient Advocacy Organization dedicated to individuals with rare diseases and organizations that serve them