Table 2 Study information for articles retrieved using databases, iterative review of each paper's references, and purposefully
| Â | N |
|---|---|
Total sample pool of 516 articles from 199 journals | Â |
   Mean articles per journal | 2.6 |
   Number of journals with one article only | 123 |
   Number of journals with 10 or more articles | 9 |
Randomly selected 30 articles from 24 journals | N (%) |
   Retrieved from |  |
PUBMED | 14 (47%) |
Reference sections of articles | 9 (30%) |
Other databases | 7 (23%) |
   Study type |  |
Qualitative (Interviews, Focus Groups, Ethnography) | 13 (43%) |
Literature reviews+ | 8 (26%) |
Quantitative (Survey, Time diaries) | 7 (20%) |
Mixed methods | 2 (7%) |
Randomized Intervention Studies | 0 |
   Study period |  |
Cross-sectional or one visit | 21 (70%) |
Longitudinal or multiple visits | 1 (3%) |
N/a (literature review) | 8 (27) |
   Contained visual model |  |
Yes | 5 (17%) |
No | 25 (83%) |
   Disease type |  |
Unspecified (CSCHN, Chronic Illness, Disability) | 16 (53%) |
Asthma | 3 (10%) |
Epilepsy | 2 (7%) |
Assisted by medical technology | 2 (7%) |
Type 1 Diabetes | 2 (7%) |
Other* | 5 (17%) |
   Country of study site |  |
United States | 14 (47%) |
Australia, Canada, U.K. | 11 (37%) |
Other** | 5 (17%) |
   Gender of parent-participants |  |
Mothers only | 5 (17%) |
Mothers and fathers eligible, greater than 55% mothers | 7 (23%) |
Mothers and fathers eligible, less than or equal to 55% mothers | 3 (10%) |
Fathers only | 2 (7%) |
Unspecified | 5 (17%) |
N/a (literature review) | 8 (27%) |
   Addressed racial or ethnic minorities |  |
Yes | 1 (3%) |
No | 29 (97%) |
Purposefully selected 15 additional articles from 10 journals | Â |
   Longitudinal observational studies | 5 (33%) |
   Intervention studies | 5 (33%) |
   Addressed racial, ethnic, or very poor minorities | 5 (33%) |