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Table 1 Data Extraction Summary Table

From: A systematic review of the psychometric properties of Quality of Life measures for school aged children with cerebral palsy

Study

Outcome Measure

Sample Size Total(% female)

Mean age Years, months; SD (range)

Motor type and Distribution

Functional Severity GMFCS Levels (I-V)

McCoy, et al. 2006

C&CHQ

47 (38)

10 ± 4 (3.1-21.1)

Spasticity/dystonia

-

Narayanan, et al. 2006

CPCHILD

77 (42)

13.5 ± 3.4 (5-18)

-

I: 16% II: 4% III: 13% IV: 14% V: 53%

Narayanan, et al. 2007

CPCHILD

67 (37)

Ambulatory CP: 8.3(5-18) Non-Amb CP: 10.2 (5-18)

-

I: 18% II:4% III: 21% IV: 16% V: 40%

Waters, et al. 2007

CP QOL-Child

205 (45)

8.5 (4-12)

-

I: 18% II: 28% III: 14% IV: 11% V: 27%

Baars, et al. 2005

DISABKIDS (condition specific module)

21

(overall pop.) 12.5 ± 2.5 (8-16)

-

-

Petersen, et al. 2005

DISABKIDS (chronic generic module)

21*

(overall pop.) 12.5 ± 2.5 (8-16

-

-

Schmidt, et al. 2006

DISABKIDS (chronic generic module)

91#

12.2 ± 2.8 (8-16)

-

Mild: 24.4% Moderate: 48.8% Severe: 26.8%

Varni, et al. 2006

PedsQL 3.0

241 (44)

8.1 ± 4.4 (2-18)

Hemiplegia = 55 Diplegia = 84 Quadriplegia = 85 Ataxia = 7 Diagnosis unavailable = 14

I: 11% II: 16% III: 35% IV: 18% V: 15%

  1. Note. Hyphens (-) indicate no published research, or information not available. *CP population as a part of a study with 360 children with chronic conditions (asthma, arthritis, cerebral palsy, cystic fibrosis, dermatitis, diabetes, and epilepsy), 52% female. # CP population as a part of a study with 1153 children with chronic conditions (asthma, arthritis, cerebral palsy, cystic fibrosis, dermatitis, diabetes, and epilepsy), 48% female.