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Table 2 Overview of study measures in the web-based survey

From: A prospective analysis of the long-term impact of the COVID-19 pandemic on well-being and health care among children with a chronic condition and their families: a study protocol of the KICK-COVID study

Study Measures: Web-based, extended Questionnaires

Parents

Teenagers

Socio-demographic and medical assessment

 General socio-demographic factorsb

x

x

 Factors related to the chronic conditionb

x

x

 MacArthur Scale

x

 

 Winkler-Indexa

x

 

Emotions and psychological distress during the COVID-19 pandemic

 COVID-19 pandemic-specific impact on parental well-being and everyday lifeb

x

x

 Corona-specific burdena

x

x

Psychosocial adjustment

 Self-Assessment Manikin SAM

x

x

 Well-Being Index WHO-5

x

 

 Patient Health Questionnaire PHQ 4

x

 

 Perceived-Stress Scale PSS-4

x

 

 De-Jong-Gierveld-Skala

x

x

 Strengths and Difficulties Questionnaire SDQ

xa

xa,c

 Child Health Questionnaire CHQ

x

 

 KIDSCREEN-27a

 

x

Coping and resources

 Coping orientation to problems experienced Brief COPE

x

 

 General self-efficacy scale (ASKU)

x

 

 Scale for the assessment of internal and external sense of control (IE-4)

x

 

 OSLO social support scale OSLO

x

 

 Child’s coping

x

 

 Child’s ressourcesb

x

 

 Coping with a disease questionnaire CODI

 

x

 Questionnaire of Resources in Childhood and Youth FRKJ-8-16a

 

x

 Social integrationa

 

x

 Corona-specific self-efficacy

 

x

Family relations and interactions

 Potentially harmful parenting behavior

x

 

 Family-related life questionnaire FLQa

x

 

 Brief Parental Burnout scale BPBS

x

 

 Parental-Representation-Screening-Questionnaire EBF-KJa

 

x

 Corona-specific parental supportb

 

x

Control Variables

 Social desirability scale (SEA-K)

x

 
  1. amodified
  2. bself-constructed
  3. cchild-version