Table 6 Care provider characteristics and access reported by parents/caregivers of children living with pulmonary hypertension (n = 139)
From: Quantifying side effects and caregiver burdens of pediatric pulmonary hypertension therapies
Care Provider Characteristics | n (%) |
|---|---|
Where PH care is received | |
Local pediatrician’s office | 2 (1.4%) |
Specialty Children’s Hospital | 133 (95.7%) |
There is no PH care where we live | 4 (2.9%) |
Type of PH provider | |
Pediatric cardiologist & pediatric pulmonologist | 61 (43.9%) |
Pediatric Cardiologist | 56 (40.3%) |
Pediatric Pulmonologist | 10 (7.2%) |
PH Specialist | 10 (7.2%) |
Primary care physician (Local Pediatrician) | 2 (1.4%) |
Distance to primary PH provider | |
Less than 5 miles | 4 (2.9%) |
6–10 miles | 8 (5.8%) |
11–20 miles | 13 (9.4%) |
More than 20 miles | 113 (81.3%) |
Prefer not to say | 1 (0.7%) |
Travel time to PH provider | |
Less than 10 min | 3 (2.2%) |
10–20 min | 5 (3.6%) |
21–30 min | 11 (7.9%) |
30–45 min | 15 (10.8%) |
46–60 min | 9 (6.5%) |
61–90 min | 21 (15.1%) |
More than 90 min | 74 (53.2%) |
Prefer not to say | 1 (0.7%) |
Had to move residence to be closer to PH care provider | |
Yes | 12 (8.6%) |
No | 127 (91.4%) |