From: Quantifying side effects and caregiver burdens of pediatric pulmonary hypertension therapies
Child's Characteristics | n (%) |
---|---|
Child’s race/ethnicity | |
White/Caucasian | 114 (82.0%) |
Other | 25 (18.0%) |
Hispanic | |
Yes | 6 (4.3%) |
No | 133 (95.7%) |
Citizenship status | |
U.S. Resident | 119 (85.6%) |
Outside U.S | 15 (10.8%) |
Prefer not to say | 5 (3.6%) |
Gestational age at birth | |
Less than 24 weeks | 6 (4.3%) |
More than 36 weeks | 87 (62.6%) |
24 to 28 weeks | 12 (8.6%) |
29 to 32 weeks | 4 (2.9%) |
33 to 36 weeks | 21 (15.1%) |
I don’t know | 9 (6.5%) |
Age at PH diagnosis | |
First 30 days | 32 (23.0%) |
1–12 months | 37 (26.6%) |
1–4 years | 40 (28.8%) |
5–10 years | 23 (16.5%) |
11–15 years | 7 (5.0%) |
Current age | |
< 1 year | 13 (9.4%) |
1–5 years | 45 (32.4%) |
6–10 years | 36 (25.9%) |
11–15 years | 28 (20.1%) |
16–17 years | 15 (10.8%) |
> = 18 years | 2 (1.4%) |
Down Syndrome | |
Yes | 12 (8.6%) |
No | 126 (90.6%) |
Prefer not to say | 1 (0.7%) |
Congenital heart defect | |
Yes | 67 (48.2%) |
No | 72 (51.8%) |
Health insurance | |
Yes | 131 (94.2%) |
No | 6 (4.3%) |
Prefer not to say | 2 (1.4%) |
Offered genetic testing at diagnosis | |
Yes | 81 (58.3%) |
No | 54 (38.8%) |
I don’t know | 3 (2.2%) |
Prefer not to say | 1 (0.7%) |
Genetic testing performed | |
Yes | 76 (93.8%) |
No | 5 (6.2%) |
Genetic counselor discussed results | |
Yes | 63 (82.9%) |
No | 9 (11.8%) |
I don’t know | 3 (3.9%) |
Prefer not to say | 1 (1.3%) |