Table 2 Birth defects reported by parents/caregivers of children living with pulmonary hypertension (n = 67)
From: Quantifying side effects and caregiver burdens of pediatric pulmonary hypertension therapies
N (%) | |
|---|---|
Parent/Guardian Reported Birth Defect | |
Yes | 67 (48.2) |
No | 72 (51.8%) |
Total # of Birth Defects Reported | 119 |
# of Birth Defects Reported per Child (mean, SD) | 1.13 (1.58) |
Birth defects reported by respondentsa | |
Left Heart Obstructive Lesions | |
Coarctation of the Aorta | 4 (6%) |
Aortic Valvar Stenosis (AS) | 1 (1.5%) |
Interrupted Aortic Arch / VSD | 2 (3%) |
Shone's Complex | 2 (3%) |
Conotruncal Abnormalities | |
Pulmonary Atresia (PA) | 1 (1.5%) |
Pulmonary Valvar Stenosis (PS) | 1 (1.5%) |
Taussig-Bing Variant DORV | 1 (1.5%) |
Tetralogy of Fallot | 3 (4.5%) |
Transposition of the Great Arteries | 10 (14.9%) |
Absent left pulmonary artery | 1 (1.5%) |
Pulmonary Venous Abnormalities | |
Scimitar syndrome | 1 (1.5%) |
Partial Anomalous Pulmonary Venous Return (PAPVR) | 2 (3%) |
Total Anomalous Pulmonary Venous Return (TAPVR) | 1 (1.5%) |
Systemic Venous Abnormalities | |
Persistent left superior vena cava | 1 (1.5%) |
Septation Defects and Extracardiac Shunts | |
Atrial Septal Defect (ASD) | 28 (41.8%) |
Atrioventricular Septal Defect (or AV Canal Defect) | 8 (11.9%) |
Patent Ductus Arteriosus (PDA) | 21 (31.3%) |
Ventricular Septal Defect (VSD) | 20 (29.9%) |
Patent Foramen Ovale (PFO) | 3 (4.5%) |
Single Ventricle Physiology | |
Hypoplastic Left Heart Syndrome | 2 (3%) |
Single Ventricle Anomalies NOS | 2 (3%) |
Airway/Respiratory Abnormalities/Other | |
Bronchopulmonary Dysplasia (BPD) | 2 (3%) |
Bronchomalacia | 1 (1.5%) |
Laryngomalacia | 1 (1.5%) |