Consultation of parents and healthcare professionals in end-of-life decision-making for neonates and infants: a population-level mortality follow-back physician survey

Table 2 demographic characteristics of all infants where death was preceded by an ELD

	%
Sex
Male	61.4
Female	38.6
Place of death
NICU	63.6
Other	36.4
Age at death
Early neonatal death (<7 days)	49.3
Late neonatal death (7-27 days)	22.9
Post neonatal death (>27 days)	27.9
Gestational age at birth
< 26 weeks	31.1
26-28 weeks	15.2
29-31 weeks	6.1
32-36 weeks	10.6
≥ 37 weeks	37.1
Congenital anomalies
Yes (single or multiple)	40.7
No	59.3
Severity of congenital anomalies^a
Very serious	59.6
Serious	24.6
Moderate/mild^b	15.8
Main cause of death
Prematurity and related disorders	20.0
Congenital anomalies singular	20.0
Congenital anomalies multiple	17.1
Complications of the pregnancy with repercussions for the foetus	19.3
Acute complications of the pregnancy and/or birth in a healthy foetus	13.6
Disorders acquired after birth + other disorders^b	10.0

Missing values: 6% missings in gestational age. Percentages calculated without those missing values
^aOnly answered when congenital anomalies were indicated
^bCategories ‘moderate’ and ‘mild’; and ‘disorders acquired after birth’ and ‘other disorders’ were aggregated to protect the identity of the involved infants

ISSN: 1471-2431