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Table 3 Full database search strategies

From: Parent values and preferences underpinning treatment decision-making in poor-prognosis childhood cancer: a scoping review

Database,Records Retrieved & Date Searched

Search Strategy

Medline Search Strategy (N = 218)

Searched: 6th May 2021

S1 parent*

S2 mother*

S3 father*

S4 famil*

S5 S1 OR S2 OR S3 OR S4

S6 value*

S7 (MH "Value of Life") OR (MH "Social Values")

S8 preference*

S9 "goal* of care"

S10 choice*

S11 belief*

S12 (MH "Social Norms")

S13 attitude*

S14 expect*

S15 (MH "Motivation")

S16 predisposition*

S17 influenc*

S18 experienc*

S19 (MH "Clinical Decision-Making")

S20 choose*

S21 percept*

S22 S6 OR S7 OR S8 OR S9 OR S10 OR S11 OR S12 OR S13 OR S14 OR S15 OR S16 OR S17 OR S18 OR S19 OR S20 OR S21

S23 "decision making"

S24 (MH "Decision Making, Shared")

S25 decision N2 making

S26 decision*

S27 decide*

S28 S23 OR S24 OR S25 OR S26 OR S27

S29 S5 AND S22 AND S28

S30 "poor prognosis"

S31 relaps*

S32 (MH "Recurrence")

S33 recurrenc*

S34 refractory

S35 incurable

S36 (MH "Terminally Ill")

S37 "advanc* cancer"

S38 "no realistic chance of cure"

S39 uncertain*

S40 deteriorat*

S41 (MH "Clinical Deterioration")

S42 "disease* progress*"

S43 "palliat* chemotherap*"

S44 "no reasonable chance of cure"

S45 S30 OR S31 OR S32 OR S33 OR S34 OR S35 OR S36 OR S37 OR S38 OR S39 OR S40 OR S41 OR S42 OR S43 OR S44

S46 child*

S47 p#ediatric*

S48 S46 OR S47

S49 cancer

S50 neoplasm*

S51 (MH "Neoplasm Recurrence, Local")

S52 malignan*

S53 (MH "Neoplasms")

S54 "cancer direct* therap*"

S55 oncolog*

S56 S49 OR S50 OR S51 OR S52 OR S53 OR S54 OR S55

S57 S45 AND S48 AND S56

S58 S29 AND S57

CINAHL Search Strategy (N = 115)

Searched: 13th May 2021

S1 parent*

S2 mother*

S3 father*

S4 famil*

S5 S1 OR S2 OR S3 OR S4

S6 value*

S7 (MH "Social Values") OR (MH "Values Clarification")

S8 preference*

S9 "goal* of care"

S10 choice*

S11 belief*

S12 (MH "Health Beliefs") OR (MH "Attitude to Illness")

S13 attitude*

S14 expect*

S15 predisposition*

S16 influenc*

S17 experienc*

S18 choose*

S19 percept*

S20 S6 OR S7 OR S8 OR S9 OR S10 OR S11 OR S12 OR S13 OR S14 OR S15 OR S16 OR S17 OR S18 OR S19

S21 "decision making"

S22 (MH "Decision Making, Shared") OR (MH "Decision Making, Clinical")

S23 decision N2 making

S24 decision*

S25 decide*

S26 S21 OR S22 OR S23 OR S24 OR S25

S27 S5 AND S20 AND S26

S28 "poor prognosis"

S29 relaps*

S30 (MH "Recurrence")

S31 recurrenc*

S32 refractory

S33 incurable

S34 "advanc* cancer"

S35 "no realistic chance of cure"

S36 uncertain*

S37 deteriorat*

S38 (MH "Clinical Deterioration")

S39 "disease* progress*"

S40 "palliat* chemotherap*"

S41 "no reasonable chance of cure"

S42 S28 OR S29 OR S31 OR S32 OR S33 OR S34 OR S35 OR S36 OR S37 OR S38 OR S39 OR S40 OR S41

S43 child*

S44 p#ediatric

S45 S43 OR S44

S46 cancer

S47 neoplasm*

S48 malignan*

S49 "cancer direct* therap*"

S50 oncolog*

S51 S46 OR S47 OR S48 OR S49 OR S50

S52 S42 AND S45 AND S51

S53 S27 AND S52

APA PsycInfo Search Strategy (N = 91)

Searched: 13th May 2021

S1 parent*

S2 mother*

S3 father*

S4 famil*

S5 S1 OR S2 OR S3 OR S4

S6 value*

S7 DE "Social Values" OR DE "Personal Values"

S8 preference*

S9 "goal* of care"

S10 choice*

S11 DE ‘’Uncertainty’’

S12 belief*

S13 DE "Attitudes"

S14 attitude*

S15 DE "Parental Attitudes" OR DE "Parental Role"

S16 expect*

S17 predisposition*

S18 influenc*

S19 DE "Personal Values" OR DE "Social Influences"

S20 experienc*

S21 choose*

S22 percept*

S23 S6 OR S7 OR S8 OR S9 OR S10 OR S11 OR S12 OR S13 OR S14 OR S15 OR S16 OR S17 OR S18 OR S19 OR S20 OR S21 OR S22

S24 "decision making"

S25 DE "Choice Behavior"

S26 decision N2 making

S27 decision*

S28 decide*

S29 S24 OR S25 OR S26 OR S27 OR S28

S30 S5 AND S23 AND S29

S31 "poor prognosis"

S32 DE "Disease Progression"

S33 relaps*

S34 recurrenc*

S35 refractory

S36 incurable

S37 "advanc* cancer"

S38 DE "Terminal Cancer"

S39 "no realistic chance of cure"

S40 uncertain*

S41 deteriorat*

S42 "disease* progress*"

S43 "palliat* chemotherap*"

S44 "no reasonable chance of cure"

S45 S31 OR S32 OR S33 OR S34 OR S35 OR S36 OR S37 OR S38 OR S39 OR S40 OR S41 OR S42 OR S43 OR S44

S46 child*

S47 p#ediatric*

S48 S46 OR S47

S49 cancer

S50 DE "Neoplasms"

S51 neoplasm*

S52 DE "Oncology"

S53 malignan*

S54 DE "Neoplasms" OR DE "Oncology"

S55 "cancer direct* therap*"

S56 oncolog*

S57 S49 OR S50 OR S51 OR S52 OR S53 OR S54 OR S55 OR S56

S58 S45 AND S48 AND S57

S59 S30 AND S58

Web of Science Core Collections Search Strategy (N = 149)

Searched: 30th May 2021

# 1 TOPIC: (parent* OR mother* OR father* OR famil*)

# 2 TOPIC: (value* OR preference* OR "goal* of care" OR choice* OR belief* OR attitude* OR expect* OR predisposition* OR influenc* OR experienc* OR choose* OR percept*)

# 3 TOPIC: ("decision making" OR decision NEAR/2 making OR decision* OR decide*)

#4 TOPIC: #3 AND #2 AND #1

# 5 TOPIC: ("poor prognosis" OR relaps* OR recurrenc* OR refractory OR incurable OR "advanc* cancer" OR "no realistic chance of cure" OR uncertain* OR deteriorat* OR "disease* progress*" OR "palliat* chemotherap*" OR "no reasonable chance of cure")

# 6 TOPIC: (child* OR p?ediatric*)

# 7 TOPIC: (cancer OR neoplasm* OR malignan* OR "cancer direct* therap*" OR oncolog*)

#8 TOPIC: #7 AND #6 AND #5

# 9 TOPIC: (#8 AND #4)