From: Decision-making about gene therapy in transfusion dependent thalassemia
All participants (N = 25) | Parents (N 17) | Patients (N 8) | |
---|---|---|---|
Sex | |||
• Female | 11 (64.7%) | 5 (62.5%) | |
Age (years) | 36 (17–52) | 40.5 (33 – 51) | 28.5 (17 – 52) |
Ethnicity | |||
• African-American / Black | 1 (4%) | 1 | 0 |
• Asian | 10 (40%) | 6 | 4 |
• Caucasian | 14 (56%) | 10 | 4 |
Educational Level | |||
• High School | 1 (4%) | 0 | 1 |
• Some college/Associate’s Degree | 3 (12%) | 2 | 1 |
• Bachelor’s degree | 12 (48%) | 9 | 3 |
• Post graduate/Professional | 9 (36%) | 6 | 3 |
US Regions | |||
• Midwest (OH) | 2 (8%) | ||
• Southeast (AL, FL, GA, LA) | 21 (84%) | ||
• Northeast (MA, NJ) | 2 (8%) | ||
Religion | |||
• Buddhist | 1 (4%) | 1 | 0 |
• Christian | 13 (52%) | 10 | 3 |
• Hindu | 1 (4%) | 1 | 0 |
• Muslim | 5 (20%) | 4 | 1 |
• None | 5 (20%) | 1 | 4 |
Number of children with TDT | 1 (Range 1 – 4) | 1 (Range 1 – 4) | n/a |
Age of children | 8 (Range 2 – 17) | 8 (Range 2 – 17) | n/a |
Adoptive vs Biological Parents | |||
• Adoptive | 9 (53%) | 9 (53%) | n/a |
• Biological | 8 (47%) | 8 (47%) | n/a |
Fathers vs Mothers | |||
• Fathers | 6 (35%) | 6 (35%) | n/a |
•Mothers | 11 (65%) | 11 (65%) | n/a |