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Table 1 Demographics of study participants

From: Decision-making about gene therapy in transfusion dependent thalassemia

 

All participants (N = 25)

Parents

(N 17)

Patients

(N 8)

Sex

 • Female

 

11 (64.7%)

5 (62.5%)

Age (years)

36 (17–52)

40.5 (33 – 51)

28.5 (17 – 52)

Ethnicity

 • African-American / Black

1 (4%)

1

0

 • Asian

10 (40%)

6

4

 • Caucasian

14 (56%)

10

4

Educational Level

 • High School

1 (4%)

0

1

 • Some college/Associate’s Degree

3 (12%)

2

1

 • Bachelor’s degree

12 (48%)

9

3

 • Post graduate/Professional

9 (36%)

6

3

US Regions

 • Midwest (OH)

2 (8%)

  

 • Southeast (AL, FL, GA, LA)

21 (84%)

  

 • Northeast (MA, NJ)

2 (8%)

  

Religion

 • Buddhist

1 (4%)

1

0

 • Christian

13 (52%)

10

3

 • Hindu

1 (4%)

1

0

 • Muslim

5 (20%)

4

1

 • None

5 (20%)

1

4

Number of children with TDT

1

(Range 1 – 4)

1

(Range 1 – 4)

n/a

Age of children

8

(Range 2 – 17)

8

(Range 2 – 17)

n/a

Adoptive vs Biological Parents

 • Adoptive

9 (53%)

9 (53%)

n/a

 • Biological

8 (47%)

8 (47%)

n/a

Fathers vs Mothers

 • Fathers

6 (35%)

6 (35%)

n/a

 •Mothers

11 (65%)

11 (65%)

n/a