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Table 1 Demographics of study participants

From: Decision-making about gene therapy in transfusion dependent thalassemia

  All participants (N = 25) Parents
(N 17)
Patients
(N 8)
Sex
 • Female   11 (64.7%) 5 (62.5%)
Age (years) 36 (17–52) 40.5 (33 – 51) 28.5 (17 – 52)
Ethnicity
 • African-American / Black 1 (4%) 1 0
 • Asian 10 (40%) 6 4
 • Caucasian 14 (56%) 10 4
Educational Level
 • High School 1 (4%) 0 1
 • Some college/Associate’s Degree 3 (12%) 2 1
 • Bachelor’s degree 12 (48%) 9 3
 • Post graduate/Professional 9 (36%) 6 3
US Regions
 • Midwest (OH) 2 (8%)   
 • Southeast (AL, FL, GA, LA) 21 (84%)   
 • Northeast (MA, NJ) 2 (8%)   
Religion
 • Buddhist 1 (4%) 1 0
 • Christian 13 (52%) 10 3
 • Hindu 1 (4%) 1 0
 • Muslim 5 (20%) 4 1
 • None 5 (20%) 1 4
Number of children with TDT 1
(Range 1 – 4)
1
(Range 1 – 4)
n/a
Age of children 8
(Range 2 – 17)
8
(Range 2 – 17)
n/a
Adoptive vs Biological Parents
 • Adoptive 9 (53%) 9 (53%) n/a
 • Biological 8 (47%) 8 (47%) n/a
Fathers vs Mothers
 • Fathers 6 (35%) 6 (35%) n/a
 •Mothers 11 (65%) 11 (65%) n/a