Table 1 Sample characterization of family caregivers of patients diagnosed with SMA
From: Communicating the Spinal Muscular Atrophy diagnosis to children and the principle of autonomy
Variables | Caregiver | |
|---|---|---|
n | % | |
Sex | ||
Male | 3 | 6,0% |
Female | 47 | 94,0% |
Color | ||
Yellow | 2 | 4,0% |
White | 24 | 48,0% |
Black | 4 | 8,0% |
Brown | 19 | 38,0% |
Other | 1 | 2,0% |
Education | ||
Illiterate | 1 | 2,0% |
Complete primary education | 2 | 4,0% |
Incomplete primary education | 5 | 10,0% |
Complete high school | 17 | 34,0% |
Incomplete high school | 2 | 4,0% |
Higher education | 11 | 22,0% |
Postgraduate studies | 12 | 24,0% |
Region from Brazil | ||
Center-West | 2 | 4,0% |
Northeast | 28 | 56,0% |
North | 0 | 0,0% |
Southeast | 15 | 30,0% |
South | 5 | 10,0% |
Family income | ||
< 1 minimum wage | 14 | 28,0% |
> = 6 minimum wages | 6 | 12,0% |
between 1–2 minimum wages | 15 | 30,0% |
between 3–5 minimum wages | 15 | 30,0% |