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Table 1 Sample characterization of family caregivers of patients diagnosed with SMA

From: Communicating the Spinal Muscular Atrophy diagnosis to children and the principle of autonomy

Variables Caregiver
n %
Sex
 Male 3 6,0%
 Female 47 94,0%
Color
 Yellow 2 4,0%
 White 24 48,0%
 Black 4 8,0%
 Brown 19 38,0%
 Other 1 2,0%
Education
 Illiterate 1 2,0%
 Complete primary education 2 4,0%
 Incomplete primary education 5 10,0%
 Complete high school 17 34,0%
 Incomplete high school 2 4,0%
 Higher education 11 22,0%
 Postgraduate studies 12 24,0%
Region from Brazil
 Center-West 2 4,0%
 Northeast 28 56,0%
 North 0 0,0%
 Southeast 15 30,0%
 South 5 10,0%
Family income
  < 1 minimum wage 14 28,0%
  >  = 6 minimum wages 6 12,0%
 between 1–2 minimum wages 15 30,0%
 between 3–5 minimum wages 15 30,0%