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Table 2 Experiences of CMC and their families during the COVID-19 pandemic as reported by Canadian paediatricians

From: The impact of the COVID-19 pandemic on children with medical complexity

Adverse health outcomes experienced by CMC

Adverse health outcomesa

N (%)

Hospital admissions

26 (4.8)

Loss of physical or developmental gains

22 (4.1)

Extended hospital admission

12 (1.9)

Intensive Care Unit admission

6 (1.1)

Unplanned surgery

< 5 (< 1)

Death

0

Total:

 

Reasons provided by paediatricians as contributing to a particular experience

Interrupted family caregiving

Number of respondents

School / respite service closure

116 (21.5)

Family caregiver mental illness or burnout

70 (13.0)

Interrupted rehabilitation

49 (9.1)

Loss of homecare

45 (8.3)

Increased financial stress

32 (5.9)

Family caregiver self-isolation (COVID-19 exposure or illness)

24 (4.4)

Other

46 (8.5)

Interrupted homecare

 

 Decreased homecare availability

135 (25)

 Family choice to discontinue or limit homecare

60 (11.1)

 Homecare worker illness or need for self-isolation

22 (4.1)

 Family self- isolation (COVID-19 exposure/ symptoms /infection)

18 (3.3)

 Other

7 (1.3)

  1. aAdverse health outcomes refers to outcomes that were an indirect consequence of the COVID-19 pandemic and unrelated to management of acute SARS-CoV-2 infection