From: The impact of the COVID-19 pandemic on children with medical complexity
Adverse health outcomes experienced by CMC | |
Adverse health outcomesa | N (%) |
Hospital admissions | 26 (4.8) |
Loss of physical or developmental gains | 22 (4.1) |
Extended hospital admission | 12 (1.9) |
Intensive Care Unit admission | 6 (1.1) |
Unplanned surgery | < 5 (< 1) |
Death | 0 |
Total: | |
Reasons provided by paediatricians as contributing to a particular experience | |
Interrupted family caregiving | Number of respondents |
School / respite service closure | 116 (21.5) |
Family caregiver mental illness or burnout | 70 (13.0) |
Interrupted rehabilitation | 49 (9.1) |
Loss of homecare | 45 (8.3) |
Increased financial stress | 32 (5.9) |
Family caregiver self-isolation (COVID-19 exposure or illness) | 24 (4.4) |
Other | 46 (8.5) |
Interrupted homecare | |
Decreased homecare availability | 135 (25) |
Family choice to discontinue or limit homecare | 60 (11.1) |
Homecare worker illness or need for self-isolation | 22 (4.1) |
Family self- isolation (COVID-19 exposure/ symptoms /infection) | 18 (3.3) |
Other | 7 (1.3) |