Table 1 Characteristics of participants

1, Female

1, Yorkshire and Humber

Community / Neurodisability Paediatrics

 > 20 years

2, Male

1, Yorkshire and Humber

Community / Neurodisability Paediatrics

 > 20 years

3, Female

2, South East England

Community / Neurodisability Paediatrics

10–20 years

4, Female

3,Yorkshire and Humber

Community / Neurodisability Paediatrics

 < 5 years

5, Male

2, South East England

Paediatric Neurology

 < 5 years

6, Female

4, Yorkshire and Humber

Community / Neurodisability Paediatrics

 < 5 years

7, Female

5. Midlands

General Paediatrics

5–10 years

8, Male

5. Midlands

General Paediatrics, Neurology / Neurodisability

10–20 years

9, Female

6. East of England

Paediatric Neurology

 < 5 years

10, Female

3, Yorkshire and Humber

Community / Neurodisability Paediatrics

 > 20 years

11, Female

7, North England

Community / Neurodisability Paediatrics

 > 20 years

12, Male

8, North England

Community / Neurodisability Paediatrics

 > 20 years

13, Male

9, North England

Paediatric Neurology

10–20 years

14, Female

10. Yorkshire and Humber

Community / Neurodisability Paediatrics

5–10 years