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Table 1 Participant Demographics

From: Preparing newborn screening for the future: a collaborative stakeholder engagement exploring challenges and opportunities to modernizing the newborn screening system

Expert Panel Characteristics (n = 42)

 

Count (%)

Age (years)

 

35 to 44

8 (19)

45–54

12 (28)

55–64

10 (24)

65–74

7 (17)

75 or older

2 (5)

Prefer not to answer

3 (7)

Gender

 

Female

23 (55)

Male

17 (40)

Prefer not to answer

3 (9)

Education Level

 

Doctorate Degree

30 (71)

Master’s Degree

4 (10)

Bachelor’s Degree

8 (19)

Race

 

White

36 (86)

Asian

3 (7)

Black or African American

1 (2)

Other

1 (2)

Prefer not to answer

1 (2)

Ethnicity

 

Hispanic

2 (5)

Not Hispanic

40 (95)

Self-identified Stakeholder Group*

 

Patient Advocacy

15 (36)

Research Leader

16 (38)

Advisory Committee

18 (43)

State Leader

16 (38)

Industry Leader

10 (24)

  1. *Self-identified, sometimes more than one group; two participants did not self-identify and their roles were determined by research staff based on current job title