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Table 2 Study measures

From: A prospective investigation of developmental trajectories of psychosocial adjustment in adolescents facing a chronic condition - study protocol of an observational, multi-center study

Study Measures

T1

T2

Psychosocial adjustment

 DISABKIDS Chronic Generic Module (DCGM-37)

x

x

 WHO-5 Well-Being Index (WHO-5)

x

x

 Satisfaction with Life Scale (SWLS)

x

x

 Self-Assessment Manikin (SAM)

x

x

Psychosocial adaptation – Resources

 Questionnaire of Resources in Childhood and Youth (FRKJ 8–16)

x

x

 Questionnaire of Social Competence in Children and Adolescents, subscale social initiative (FSK-KJ)

x

x

 Berlin Social Support Scales (BSSS), subscale seeking social support

x

x

 Self-Control Scale (SCS-K-D)

x

x

 Self-Compassion Scale (SCS-D short version)

x

x

 Functionality Appreciation Scale (FAS)

x

x

Psychosocial adaptation – Coping strategies

 Coping with Chronic Health Conditions Questionnaire (CODI)

x

x

 Questionnaire of Stress and Stress Management in Childhood and Adolescence (SSKJ 3–8), subscale problem-oriented coping

x

x

 Emotion Regulation Questionnaire (ERQ)

x

x

 Cognitive Emotion Regulation Questionnaire (CERQ), subscale positive refocusing

x

x

 Benefit Finding Scale for Children (BFSC)

x

x

Generic risk factors – Psychopathology

 Patient Health Questionnaire (PHQ-9)

xa

x

 General Anxiety Disorder-Scale (GAD-7)

xa

x

Generic risk factors – Developmental tasks and stress

 Questionnaire on Developmental Tasks in Adolescence

 

x

 Questionnaire on critical life events

 

x

 Perceived Stress Scale (PSS-4)

 

x

 Questionnaire on overall impact of the Covid-19 pandemic

 

x

Generic risk factors – Sociodemographic and CC-specific information

x

xb

  1. Note.aAssessed in clinical centres; bExcept age at diagnosis