Table 1 Characteristics of parents of children living with Type 1 Diabetes (T1D) or an inherited retinal disease (IRD) and characteristics of their children living with T1D and IRD
Parent Characteristics | Number of Parents | ||
T1D | IRD | Total | |
Number of children in parent family living with T1D or an IRD | |||
 1 | 14 | 12 | 26 |
 2 | 1 | 2 | 3 |
 3+ | 0 | 0 | 0 |
Total | 15 | 14 | 29 |
Number of years parenting a child living with T1D or an IRD | |||
 < 1 | 2 | 1 | 3 |
 1–4 | 8 | 7 | 15 |
 5–7 | 1 | 1 | 2 |
 8–10 | 2 | 2 | 4 |
 11–13 | 1 | 3 | 4 |
 14–17 | 1 | 0 | 1 |
Total | 15 | 14 | 29 |
Prior family history of T1D or an IRD | |||
 Yes | 4 | 3 | 7 |
 No | 11 | 11 | 22 |
Total | 15 | 14 | 29 |
Province of residence | |||
 Alberta | 6 | 5 | 11 |
 British Columbia | 0 | 1 | 1 |
 Northwest Territories | 0 | 1 | 1 |
 Ontario | 9 | 6 | 15 |
 Saskatchewan | 0 | 1 | 1 |
Total | 15 | 14 | 29 |
Child Characteristics | Number of Children | ||
T1D | IRD | Total | |
Children’s age at time of interview (years) | |||
 Under 5 | 3 | 1 | 4 |
 5–10 | 4 | 6 | 10 |
 11–17 | 9 | 9 | 18 |
Total | 16 | 16 | 32 |
Children’s age at diagnosis (years) | |||
 Under 5 | 9 | 10 | 19 |
 5–10 | 5 | 5 | 10 |
 11–17 | 2 | 1 | 3 |
Total | 16 | 16 | 32 |