From: The lived experience of chronic pain and dyskinesia in children and adolescents with cerebral palsy
Super-ordinate category | Sub-theme |
---|---|
Lives embedded with dyskinesia | Lacking control Negative emotional responses towards living with CP and dyskinesia Normalization of dyskinesia within everyday lives Physical challenges of living with dyskinesia Self-reflecting to identify dyskinesia triggers |
Still learning strategies to manage their pain and dyskinesia | Self-adopting or learning strategies from parents Seeking out ‘child friendly’ treatment strategies Problem solving pain Seeking comfort amongst family Exerting control over their environment |
The real world challenges of living with chronic pain | Pain a usual part of life Negative emotional responses towards living with chronic pain Feelings of social isolation All-encompassing nature of severe pain Pushing through pain Hoping for a solution The way pain really feels Trust in caregivers |