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Table 5 Super-ordinate categories and their sub themes

From: The lived experience of chronic pain and dyskinesia in children and adolescents with cerebral palsy

Super-ordinate category

Sub-theme

Lives embedded with dyskinesia

Lacking control

Negative emotional responses towards living with CP and dyskinesia

Normalization of dyskinesia within everyday lives

Physical challenges of living with dyskinesia

Self-reflecting to identify dyskinesia triggers

Still learning strategies to manage their pain and dyskinesia

Self-adopting or learning strategies from parents

Seeking out ‘child friendly’ treatment strategies

Problem solving pain

Seeking comfort amongst family

Exerting control over their environment

The real world challenges of living with chronic pain

Pain a usual part of life

Negative emotional responses towards living with chronic pain

Feelings of social isolation

All-encompassing nature of severe pain

Pushing through pain

Hoping for a solution

The way pain really feels

Trust in caregivers