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Table 1 Interview Guide

From: The lived experience of chronic pain and dyskinesia in children and adolescents with cerebral palsy

Question
Can you tell us about the people who help look after you?
How should we describe the uncontrolled movements in your body?
What is it like to have uncontrolled movements in your body?
Interviewer and participant review previously completed body diagram to clarify pain status and most bothersome body location of pain
How does this pain get in the way of your life?
How does pain make you feel on the inside?
Do the people who look after you at school, home, and the hospital know about your pain?
What things do you do when you are in pain?
What things do other people do to help you?
What would help you to look after your pain better in the future?