Skip to main content

Table 4 Levels of care burden and specific difficulties perceived by caregivers

From: Looking into the life of technology-dependent children and their caregivers in Korea: lifting the burden of too many responsibilities

Variables Mean ± SD nc (%)
Perceived care burdena
 Physical burden 5.5 ± 1.4 61 (82.4)
 Psychosocial burden 5.1 ± 1.5 51 (68.9)
 Financial burden 4.9 ± 1.5 43 (58.1)
Specific difficultiesb
 No manpower to care for the child while the caregiver is resting 6.0 ± 1.4 63 (87.5)
 Need someone’s help to take care of the sick child 6.0 ± 1.4 62 (86.1)
 Lack of energy and time to do household chores 6.9 ± 1.4 62 (86.1)
 Always tired 5.9 ± 1.4 61 (84.7)
 Lack of energy and time to care for another child or family 5.6 ± 1.8 57 (79.2)
 Lack of support when travelling to hospital 5.3 ± 2.0 56 (77.8)
 Substantial amount of medical expenses 5.5 ± 1.8 50 (69.4)
 Lack of knowledge on how to take care of the sick child 4.9 ± 1.8 44 (61.1)
 Need help with some medical procedures at home 4.6 ± 2.3 44 (61.1)
 Hard to coordinate hospital appointments 4.6 ± 2.2 42 (58.3)
 Had to forgo some medical care due to financial reasons 3.9 ± 2.4 31 (43.1)
 Need help from healthcare professionals for care at home 3.7 ± 2.2 28 (38.9)
 Lack of knowledge on how to manage medical devices 3.6 ± 2.0 26 (36.1)
  1. SD standard deviation
  2. aPerceived level of care burden and difficulties were measured on a 7-point Likert scale ranging from 1 (not at all) to 7 (very much)
  3. bThe list below was derived from interviews conducted before constructing the questionnaire
  4. cBurden and difficulties were dichotomized by combining responses of 5, 6, and 7 (very much) into considerable (burden or difficulty) category, and others into a not considerable category