Table 1 Topic guide
From: Understanding the child-doctor relationship in research participation: a qualitative study
Main topics | Subtopics for further prompting |
|---|---|
Introduction to research | Importance of research By who approached Circumstances Healthy volunteer vs. patient participant |
Information | Oral and written information Other sources of information Discussing information with others |
Reasons for (not) participating | Personal benefit Helping others Other reasons |
Decision-making | Who gave consent Influence of others such as parents and doctor Voluntary choice |
Being in a study | Role of health professionals, family, friends Burden and risks Benefits Thinking about withdrawal Intertwinement with disease Results Acknowledgement, reward Impact on self and others Maturity Vulnerability Future participation |
Advices | Health professionals Children Most important things discussed |