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Table 1 A list of the identified terms extracted from the 77 included studies

From: A concept analysis of children with complex health conditions: implications for research and practice

Extracted terms

Categories of the terms

Used terms in the literature

Relevant articles

Terms/related terms for children with complex care needs (CCHC)

Complex care needs

Children with special health care needsa

Across the studies

Children with chronic health conditionsa

Across the studies

Children with complex care needs

2

Children with special needs

4, 5, 24, 33

Children with chronic physical illness

6

Children with complex health conditions

7, 10

Children with special health care needs (CSHCN)

11, 31

Complex chronic conditions (CCCs)

12–17, 19–22, 23, 43

Children with life-limiting conditions

13, 14 15

Children with life-threatening conditions

13, 15, 17

Children with life-threatening illnesses

16, 22

Children with self-limiting conditions

16, 22

Children with palliative conditions

22

Children with special health care needs

36

Children with chronic conditions

39

Children with complex chronic conditions

40

Children with chronic illnesses

42

Children with severe neurodisabilities

45

 

Specific conditions

Children with cancer

13, 48

Children with cerebral palsy

26

Children with hemophilia A, B or Factor VII (FVII) deficiency

27

Children with non-traumatic dental conditions

41

Children with autism

47

 

The most complex cases (sub-category of CCHC)

Technology-dependent children

4, 5

Children with multisystem chronic disease processes

4, 5, 25

Children with medical complexity

4, 11, 19, 37, 46

Medically complex children

5

Children medically fragile

19, 24

Medically fragile children

24

Children with medically complex chronic disease

25

Children with medical complexities with a common denominator (e.g., incontinence)

28

  1. a these terms were the two most common (about 40 times)