Table 2 Patient Characteristics: Demographic characteristics for : Children of parent participants in Group 1 (excluding those patients represented in Group 2), and Group 2 (adolescent patient participants)
| Children of parents in Group 1 (n = 9)a | Group 2 (n = 9) | |
|---|---|---|
| Age, Median (IQR) | 10 (6–11) | 14 (14–16) |
| Female gender n (%) | 6 (66.7) | 5 (55.6) |
| African American Race, n (%) | 7 (77.8) | 9 (100.0) |
| Non-Hispanic Ethnicity, n (%) | 6 (66.7) | 9 (100.0) |
| Education Level, n (%) | ||
| Not yet in school | 2 (22.2) | 0 |
| In School | 7 (77.8) | 8 (88.9) |
| High School Graduate | 0 | 1 (11.1) |
| Patient HRQOL Score by self-report (n = 9), median (IQR) | – | 90.7 (74.4–93) |
| Parent-proxy HRQOL Score, median (IQR) | ||
| All parents (n = 15)b | 68 (57.6–73.8) | |
| Parents not part of dyad (n = 9) | 63.7 (57.6–73.8) | |
