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Table 2 Patient Characteristics: Demographic characteristics for : Children of parent participants in Group 1 (excluding those patients represented in Group 2), and Group 2 (adolescent patient participants)

From: Patient and family experience with chronic transfusion therapy for sickle cell disease: A qualitative study

 Children of parents in Group 1 (n = 9)aGroup 2 (n = 9)
Age, Median (IQR)10 (6–11)14 (14–16)
Female gender n (%)6 (66.7)5 (55.6)
African American Race, n (%)7 (77.8)9 (100.0)
Non-Hispanic Ethnicity, n (%)6 (66.7)9 (100.0)
Education Level, n (%)
 Not yet in school2 (22.2)0
 In School7 (77.8)8 (88.9)
 High School Graduate01 (11.1)
Patient HRQOL Score by self-report (n = 9), median (IQR)90.7 (74.4–93)
Parent-proxy HRQOL Score, median (IQR)
 All parents (n = 15)b68 (57.6–73.8) 
 Parents not part of dyad (n = 9)63.7 (57.6–73.8) 
  1. aDoes not include those patients represented in Group 2
  2. bIncludes parent-proxy HRQOL scores of some patients included in Group 2