Table 1 Profile of participants from included studies
Author and Year | Number of Parents | Profile of Parents mother/father | Number of Children | Gender of child | Age of Children | Disability | Characteristics |
|---|---|---|---|---|---|---|---|
Benderix et al., 2007 | 5 couples | Not specified | 5 | Not specified | 10-11 years | Learning disability moderate ×1 severe ×3 bprofound × 1 | Delayed verbal/absent language, lacked spontaneous seeking of enjoyment, little or no interest in other persons, hyperactivity, short attention span, self-injurious behaviour, high pain threshold, disorders of sleep. |
Gona et al., 2016 | 103 parents (& HCP’s) | Not specified | Not specified | Not specified | Not specified | Not specified | Not specified |
Hartrey 2003 | 1 | mother | 1 | female | 8 years | intellectual regression | Rett Syndrome, scoliosis, anti-social, constipation, reflux, teeth grinding |
Hodgetts et al. 2013 | 9 | mothers (8) father (1) | 7 children (under the age of 19) (2 aged 19&29) | Male | 6-10 years | All had moderate to severe intellectual disability. | 3 had some functional language, 2 did not have functional language. 4 individuals were diagnosed with Asperger syndrome, had mild or no intellectual impairment, and demonstrated conversational language skills. |
Mann 2013 | 13 | 13 mothers | 13 | Male (11) Female (2) | 4-17 yrs | Disability not specified. Autism described as Moderate (4), mild (3), severe and ADHD (2) Mild to mod (1) | *as reported by mothers |
Minhas et al. 2015 | 15 | mothers (11) fathers (4) | Not specified | Male (12) Female (3) | Not specified | Not specified | Not specified |
Keenan 2007 | 95 parents and carers | 87 (female = 4 grandmothers and 3 mothers) 8 (male) | 100 | Male (80) Female (20) | mean age 8 years 30 (1-6 yrs) 56 (7-12 yrs) 11 (13-15 yrs) 3 (16 yrs) | Intellectual disability: 56 with learning disability ranging from mild, moderate and severe | ASD (90) Aspergers (7) PDD (2) Unknown (1) |