Table 1 Quick overview of the CPG Palliative care for children

The guideline consists of three chapters, each providing recommendations on the topic at hand.

 (1) Symptoms

  Recommendations on recognition and treatment of symptoms, such as anxiety, nausea, pain, spasticity and fatigue.

 (2) Communication & decision-making

  Recommendations on decision-making, such as:

- Take into account the values and preferences of the child and/or parents;

- Be conscious of the fact that decision-making is a continuous process;

- Ask the child and/or parents at various moments which decision-making role they would like to have;

- Carry out the conversations in a quiet, private and comfortable space;

- Clarify mutual goals;

- Confer with the child and the parents, […], use nonprofessional language, and repeat what has been discussed;

- Record the view of the parents in the patient file.

 (3) Organisation of palliative care

  Recommendations on the organisation of care, such as coordination & responsibilities, patient file, educating healthcare professionals and financing palliative care for children.