Skip to main content

Table 1 Concepts and instruments used in Diabetes LEAP

From: Study protocol of Diabetes LEAP: a longitudinal study examining emotional problems in adolescents with type 1 diabetes and their parents/caregivers

Construct Instrument Baseline 1 year 2 year
Adolescent
 4-week (current) mood/anxiety disorder DISC-IV x x x
 1-year history mood/anxiety disorder DISC-IV x x x
 Lifetime history mood/anxiety disorder DISC-IV x   
 Severity of depressive symptoms CDI-2 x x x
 Severity of anxiety symptoms GAD-7 x x x
 Diabetes-specific distress PAID-T x x x
 Psychosocial problems SDQ x x x
 Following diabetes-care recommendations ADQ self-report x x x
 Responsibility diabetes care DFRQ self-report x x x
 Care provided mood/anxiety disorder Medical record, doctor x x x
 Gender, age, weight, height Medical record x   
 Highest educational level Medical record, self-report x x x
 Diabetes duration, age at diagnosis Medical record x   
 Lifetime HbA1c Medical record x   
 Past year and most recent HbA1c Medical record x x x
 Glucose measurements/variability (subgroup) Medical record x x x
 Physical/psychiatric co-morbidities Medical record, self- & parent-report x x x
 Life-events DISC-IV, parent-report x x x
 Insulin treatment modality Medical record x x x
 Diabetes-related hospitalisations, severe hypoglycemic events, occurrence of diabetes ketoacidose Medical record x x x
 Past year number of visits, other contacts, cancelled visits, no shows Medical record x x x
Parents/caregivers
 Elevated depressive symptoms PHQ-9 ≥ 10 x x x
 Elevated anxiety symptoms GAD-7 ≥ 10 x x x
 Diabetes-specific distress PAID-PR x x x
 Adolescent depressive symptoms CDI-2 parent-report x x x
 Psychosocial problems SDQ parent-report x x x
 Following diabetes-care recommendations ADQ parent-report x x x
 Responsibility diabetes care DFRQ parent-report x x x
 Adolescent life-events Parent-report x x x
 Gender, age, ethnic background, education, employment status, partner Self-report x x x
 Socio-economic status family Self-report, medical record x x x
 Primary diabetes caregiver Self-report, doctor x x x
 Relation to child, description family Self-report x x x
 Current and history mood/anxiety disorder Self-report x x x
 Current psychiatric problems in family Parent-report x x x