Table 1 Interview Questions
Interview Question | Probe(s) |
|---|---|
Tell me about (child’s name) and his/her care needs at home | Who provides your child’s care at home? |
What is (child’s name) typical care routine? | |
Can you tell me why (child’s name) was admitted to the PICU? | |
What has your experience been like since (child’s name) was admitted? | Is this a new experience for you? |
If no: Can you describe how this experience has differed for you? | |
As a parent (or caregiver), you are used to providing (child’s name) care at home. The staff in the PICU is now carrying out some of those caretaking needs, such as (name a home care task the parent discussed earlier). • How are you involved in your child’s care in the PICU? | Do you think that being involved/more involved in your child’s care is/would be helpful for you? For your child? |
• How would you like to be involved? | |
What can staff do to better support you while (child’s name) is in the PICU? | How can staff work together with you to care for your child? If the child was previously admitted to the PICU: Were there things staff did during your child’s previous admission(s) that you found helpful? |
If a parent of a child with home care needs similar to (child’s name) was preparing for a PICU admission and asked you what to expect, and how to prepare – what would you tell that parent? |